Tag: MS
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Frienemy 💔
Sad doctor visit yesterday. I feel knocked out. I am grieving . The Holy Spirit gave me this verse in 2 thessalonians 3 to comfort me (and to comfort my peeps too.) note: having a progressive neurological disease is about a constant state of grief. Don’t you think? Oh you needed that leg? Well now…
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TMI warning ⚠️
My husband chose to clean up three potty messes for me today. He’s a brick. #legsgottootired This thought occurred to me: it might be good to share what I’ve learned about managing incontinence. I just might help someone or their loved ones with this uncomfortable yet common issue. Here is a list of thoughts which…
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Who’s sleeping right now?
You know who you are. ❤ God: I have a new pain in my head. It is 2:40 am. Everyone is sleeping in my house. I just asked You for the strength to get dressed and get up to take some organifi. It’s all I could think to do. Im scared that MS is forming…
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Chronic illness
🙏I was thinking with God about our difficult lives and all of the suffering that is our lot. (Well, at least from my point of view. Our brothers and sisters who live in 3rd world or war torn countries would be laughing hysterically right now I guess.) 🙏it is so much easier to follow Jesus when…
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🎁
My man and I had our weekly conflict date. Tuesday after work until we work it out or until one of us is dead. (Just kidding.) We keep to the rules of fair engagement as per Les and Leslie Parrot’s book The Good Fight. We walked to the gas station and got an unsweetened ice…
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Scooter
We got my new scooter today. My husband and kids helped me take it out of the box and set it up. I rode it around the house and LugNut, our chihuahua mix, rode in the basket. I was gonna take it out for a spin around the neighborhood, but I Suddenly discovered that…
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A Severe Mercy
Getting sick has been the best thing-worst thing in my life; in my children’s lives, in my marriage. 🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻 A wise woman once said to me, It is good for the things that can be shaken To BE shaken. –Nancy Lawrence Another wise woman once said to me after my first husband left me, This’ll…
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Going to the mattresses
I’ve gone on a retreat to my oldest daughter’s house the last few days. I was ready to just leave my hubby. (Isn’t that the first thing we girls try to change? Like it’s a cure-all. But the thing about deciding to cut and run….you have to take your self with you.) I’ve got some…
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Iron Lungs and Multiple Sclerosis🌻🙏🌻
I had a dream about my grandson just now. It’s 5:48 am. My husband is already gone to work. Bless him. My grandson was born during the worst of the pandemic. I didn’t see him or hold him for four months. I’ve only seen him five times since then. The prognosis for the future is…
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In sickness and health? Real talk.
Ok some of my brothers might want to sit this one out. #TMI I’m having to think some hard thoughts. About potty accidents My girlfriend, whose Mom died with MS, was talking to me about permanent catheterization. What ever that’s called. I think I’m gonna have to go there sweet peeps. 🌻 when I have…
reboot my ❤ 